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Sat., Aug. 29
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Help cure cystic fibrosis


To The Editor:

Thank you to the Ogdensburg community, family, and friends who supported our spaghetti dinner to benefit cystic fibrosis research held at Northwest Technical Center on March 5. Money raised will help fund research for finding a cure for cystic fibrosis.

Almost 100 percent of the of the research done to find a cure for cystic fibrosis is funded from individual fundraising and the annual Great Strides Walk. Because of this individual support, a drug, Kalydeco was approved by the U.S. Food and Drug Administration last year and has made a big difference for people with the D551 mutation, which is about 5 percent of those with CF. This year two new drugs, VX809 and VX661, are in the trial stage. These new drugs offer great hope. Kalydeco, VX809B, and VX661 all are aimed at the underlying causes of CF, whereas current medications are aimed at reducing the symptoms.

I would also like to give a special thank-you toNorthwest Technical Center and to Steve Putman and his culinary arts students. Not only did they prepare the delicious meal and desserts during the day, but they returned after school to help serve, and then stayed to clean up after the dinner. I would also like to thank Beth Lyons and everyone at The Journal and Advance-News for the wonderful coverage they provided for our dinner. Thank you to our other workers: Jim Howard, Judy Green, Mary Jane Purves, Leila Murray, Jan Tyler, Sue Gagnon, Sue Watson, Billie Jean Snyder, Connor Ward, Storm McDonald, and student council members Nabiha Qudsi, Jacob Scaggs, Shawna Rickett, and Charlotte Miller.

Thank you to Price Chopper for donating bags for takeout dinners. Thank you to Suzanne Urban, Linda Krol, Judy Premo, Melissa Tyler, Vera Nichols, and Jan Tyler for donating books for our sale.

The winner of the 50-50 drawing was Moe Lalonde. The drawing for the pizza raffle and bucket of toys raffle will be held after the Great Strides Walk at the Ogdensburg Community Center on May 18.

For those wishing to walk in the Great Strides Walk or for more information, please visit the website: or call the Syracuse Cystic Fibrosis Foundation at 463-7965.

Nancy Rudiger


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